Blog Post List
January 24, 2014
By Barbara Coombs Lee, PA, FNP, JD, President Compassion & Choices Marlise Munoz is dead . She died Nov. 26 , probably of a pulmonary embolus, when she was 14 weeks pregnant. But John Peter Smith Hospital in Fort Worth, Texas refuses to turn off the machines and let the family claim the body of their beloved. This family is grieving a tragic loss. Their grief is all the more devastating because the firm wishes of their loved one – the woman paramedic, the daughter and wife who knew she never wanted to be maintained in an unconscious state – mean nothing. Texas law says life support may...
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May 16, 2013
Dr. Tom Preston, a Compassion & Choices leader in Seattle, chose these poignant words for the title of his new book . They are powerful words, gripping even on paper. Imagine them emerging from the lips of a patient, perhaps one whom the doctor has treated over decades, who is now dying of cancer. They strike right at the core of a physician’s identity, training and moral compass. Preston knows well that each person, each healer and each caregiver responds to such a request from patient or loved one from the deepest parts of their own authentic being. He begins his book quoting Dumbledore...
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February 26, 2013
Michael Morgan , founder and Executive Director of the African American Music Foundation, visited my church this week to celebrate Black History Month . During morning service his thrilling bass voice highlighted an inspiring memorial to Paul Robeson. That afternoon he delivered a recital and lecture on spirituals to an overflow crowd. I’ve been humming these spirituals and mulling their words ever since. Mr. Morgan is charismatic and riveting and he adores spirituals. As he explained, this is not only African American music. It is American music — never composed, but arising organically from...
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January 24, 2013
Last week the government of Quebec announced plans to recognize aid in dying as a legal and protected medical practice in the province. They promise a new law by this summer. A tremendously exciting announcement, it reveals a seismic shift in the thinking of both medical and political leaders. I cannot overstate the magnitude and power of this shift, and fervently hope America’s medical associations and politicians soon follow suit. Specifically, the government of Quebec intends to regulate aid in dying in spite of the federal crime of assisting a suicide. As in the U.S., federal laws...
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October 31, 2012
This election season is extracting an enormous toll from candidates and citizens alike. Pressure is always intense in a Presidential year, but this year is different. Airwaves and Internet hammer away with news of poll after poll, minute campaign details and endless tit for tat. The presidential race, Senate and House races — even local campaigns — all occupy space in national media. Twenty e-mails appear in my inbox by noon each day, all URGENT and all pleading for funds. The money flow is mind boggling. According to followthemoney.org , state races alone have raised almost $1.2 Billion...
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September 5, 2012
Imagine yourself the son or daughter of a grievously ill octogenarian. Your mom or dad suffered a catastrophic event and has been in an ICU, barely conscious, for two weeks. You understand organs are shutting down, but you struggle to understand the medical jargon or the purpose of tubes and machines attached to every orifice. You and your family have kept a steadfast vigil at the hospital, and today the doctors called a meeting to talk with the family. The family is desperate to understand what is happening and learn what lies ahead. The doctor needs the family to authorize a treatment plan...
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June 27, 2012
Expansion in Oregon Tests whether it’s a Distinction without a Difference As I previously blogged, the Catholic hospital brand is no longer desirable in the marketplace for mergers and acquisitions of healthcare entities. This realization led Catholic Healthcare West , the nation’s fifth largest healthcare conglomerate, to give up its status as a ministry of the Catholic Church. In doing so the corporation exempted itself from obedience to the Ethical and Religious Directives for Catholic Healthcare (ERDs) and released its secular hospitals from control by their local bishops. Local bishops...
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June 19, 2012
It used to be Americans viewed Catholic hospitals and healthcare systems with universal respect and trust. They had no reason to do otherwise. Founded in the nineteenth century by orders of nuns with a mission to care for the poor, Catholic hospitals grew and thrived in modern industrial medicine. Many became conglomerates and dominant sources of healthcare in cities and towns throughout the nation, especially in the Western United States. The trade association founded in 1915, the Catholic Health Association today represents 1200 Catholic health care sponsors, systems, facilities, and...
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May 30, 2012
Why is it so difficult for doctors to confront the truth when a patient is dying, and almost impossible for most to talk about it openly with the patient and loved ones? Last week I shared a hunch. A journalist asked me the question, “Why do doctors find these conversations so hard?” I said I could only speculate. But I would base my guess on decades of practice as a nurse and physician assistant, and watching doctors from the vantage points of those allied professions. My guess was that doctors are among the people in our society most frightened by death. Their fear reinforces our society’s...
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May 25, 2012
Anti-choice forces are taking aim at end-of-life care . They’re after people at the end of a long decline who exercise their right to stop life-prolonging technology or treatment. Their tactic is to tie the hands of doctors attending those patients, when palliative treatment might ease the patient’s chosen death. They seek to undermine the widespread agreement among doctors: Treatments can be stopped, and should be stopped as humanely as possible, when patients’ wishes are clear. Palliative care image via Shutterstock.com But the medical establishment’s support for patient choice exists...
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April 19, 2012
How do we get doctors to honor our wishes at the end of life? Most recommend preparing an advance directive , and I'm no exception. These documents are not infallible, but they are the best things we've got going for us when we can't speak for ourselves. However, one popular advance directive could actually subvert your wishes with its stealth anti-choice language. It's called "Five Wishes." There are two general kinds of advance directive . One is called a "health care proxy" or "power of attorney for health care" and it delegates a person to make decisions on your behalf. The other is a "...
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April 16, 2012
Compassion & Choices member Persis Oberreither, by completing an advance directive, inspired her teenage daughter to do the same. Here she tells of the heartbreak – and comfort – of honoring her daughter’s wishes. AMY'S STORY In recognition of National Healthcare Decisions Day, I want to share with you my first-hand knowledge of the incalculable importance of having an advance directive, and of discussing your feelings about end-of-life matters with the people you love and trust. My eighteen-year-old daughter and only child, Amy, was involved in a car accident in 2001. She survived the...
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March 30, 2012
A study published this month paints a troubling picture. Imagine palliative care doctors, working to deliver the best possible comfort care to their patients. Yet even as they meet the recognized best practices of their profession, their colleagues are judging their covert intentions and moral fiber. Over half of the physicians who responded to the survey, published in the Journal of Palliative Medicine (JPM), reported they had been accused of “murder” or “killing” at least once in the past five years. Most often, their accusers were fellow members of the healthcare team. Accusations came...
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March 21, 2012
Eighteen years ago, Dr. Peter Goodwin led the fight to grant Oregonians the right to end-of-life choice. I was honored to work alongside Peter as a co-campaigner and call him a friend. Both as a physician and an advocate, he promoted honesty in facing death. This month he confronted his own approaching death with the same honesty. Terminally ill with a rare, fatal brain disease with no known cure, Peter exercised the right to a peaceful death he helped secure. Without Peter, Oregon's Death with Dignity Act (DWDA) simply would not exist, nor would our national movement be where it is today. He...
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March 16, 2012
After years of gains and setbacks, the national movement for same-sex marriage is enjoying a period of remarkable success. Massachusetts and Connecticut became first adopters in 2004 and 2005 and that came after twenty years of advocacy. Turmoil followed, especially in California. But in 2009 three states (Iowa, Vermont, New Hampshire) approved same-sex marriage. New York followed last June , and now the Washington and Maryland legislatures have acted in quick succession. Delaware’s governor predicts his state is not far behind. It’s making me think about similarities between the movement for...
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March 9, 2012
Yesterday was the 101st annual International Women’s Day . In some countries this Day holds the same stature as Mother’s Day and celebrates women’s economic, political and social achievements. More or less concurrently, proposals landed in Congress and in states around the nation to excuse insurance plans and religious employers from birth control coverage if they have moral objections. That a day to honor women should fall amidst a political action so harmful to women – attacking something so basic and benign as contraception – demonstrates the inequities women still suffer even here in...
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February 23, 2012
Over and over we see the U.S. Conference of Catholic Bishops confuse the right to exercise their religion with a right to impose their religion on Americans who don’t share it. This is not a subtle difference. And, as Bill Moyers points out in the context of their intransigence on access to birth control, the bishops aren’t content with an exception from the rule that, like other employers, they provide birth control coverage to workers in their hospitals and universities . They also want to be able to keep their employees from obtaining birth control pills from a third-party insurer, at no...
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February 10, 2012
New Messaging From Politicians Sometimes progress toward human dignity seems agonizingly slow, especially affirming the role of choice at the end of life. So it’s heartening when evidence of seismic change shows up. Last week’s presidential debate lifted our hearts for this reason. Contenders for the Republican nomination were in Tampa, and questioners brought up Terri Schiavo . Mrs. Schiavo, you’ll recall, had been in a permanent vegetative state for fifteen years in 2005, when the family’s conflict over whether she would want continued artificial feeding rocked the state of Florida and...
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January 12, 2012
In November Dr. Ken Murray published a blog on Zocalo Public Square called “How Doctors Die.” It’s been reverberating through the Web ever since, prompting a continuous stream of comments and inspiring others to offer their own essays and input. What struck a chord was the assertion that doctors with terminal illness often reject the long-shot technology that traps other people in cycles of hospitalizations, surgeries, procedures and chemicals, and ensures their final days will be in intensive-care lockdown. Do the same doctors who personally reject such misery recommend miserable, intrusive...
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January 5, 2012
2011 closed with good news out of Kentucky. On Friday Governor Steve Beshear refused to approve a Louisville hospital merger that threatened patient choice . Compassion & Choices, MergerWatch, the National Women's Law Center and other national advocacy organizations joined local activists to raise constitutional and public policy questions regarding potential threats to end-of-life and reproductive care. In announcing his decision, Gov. Beshear noted “significant legal and policy concerns.” Religious doctrine limits patient choice in over 600 of our nation’s hospitals , nursing homes and...
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