Hi! I'm Helena; I'm a mom to an exceptionally happy little boy with a rare neurological disorder, an account executive at a digital agency, and the founder of a medical nonprofit called The TBCD Foundation (www.TBCDFoundation.org). I'm passionate about parenting children with disabilities respectfully, creating a healthcare system without gaps, and workplaces that support families both in word and action. You can follow my family's journey on TikTok at MiracleForMax.